Tuesday, January 8, 2013
Thanksgiving, 2012 Homotoxicology style
PHASE 3 AND 7 YEAR ANNIVERSARY
Well, time got away from me again and it's been forever since I posted last. So....let's back up. Kale did extremely well on phase two of his homotoxicology protocol. So good in fact that most of his numbers decreased. However, even though we were not intending to go intracellular for detox yet, Kale's body took it upon itself to go intracellular and he crashed on some of his numbers. This just means that his body really really wants those toxins out and it was moving them out too fast. Therefore....depleting the energy in his cells and we needed to spend this next phase rebuilding the energy. Although we did not see any HUGE gains in phase two, overall I can tell you that there were small noticeable gains. Kale's eye contact has improved tremendously, along with his receptive language skills. He is listening and following directions like he never has before. I can stand at the bottom of the stairs, yell KALE and he will come to the top of the staircase and look at me like, "what do you want mom?" THIS IS HUGE PROGRESS!! I use to stand at the bottom of the staircase and yell for him, just to see if he would respond in any way and let me tell you......I could have stood there all day, yelling his name frantically, and he never came to see what I wanted.
We had our 3rd phone call with Mary on December 18th. Our new protocol came in the mail for phase 3 on December 22nd. I made a very wise decision to put off starting the new stuff until the day after Christmas so that our family had a shot at a memorable and enjoyable Christmas. Well....guess what, Christmas was awesome this year...for ALL of us! YEP, you heard it, for ALL of us! Kale did great opening gifts on Christmas Eve and he was excited when he woke up on Christmas morning to see the pile of gifts waiting for him to open. He opened every single present that morning and had an excited look on his face as he grabbed in his pile for more! We left our house at 2:30 pm that day for my aunts house...and then onto my parents house for more and we didn't get home until almost 11 pm. Guess what? Kale opened presents at both houses, didn't have one single meltdown and enjoyed himself all day long. IT WAS AWESOME!!
December 26th....started phase 3 of our homotoxicology protocol. This phase, we are clearing his lungs, respiratory and large intestine. 3 days after the start of the new protocol, my cousin came over to cut the boys hair. This is usually a flippin nightmare for Kale. He is SOOOO sensitive to getting his haircut because of his tactile defensiveness. He is a sensory boy through and through. All of these years, and the haircuts just don't get any easier. He has managed to work through brushing his teeth, washing his hair and brushing it, but the haircuts are just herendous. Well......not this time! Jenna walked in, told him what she was going to do and we put a chair in the kitchen in front of my little tv. Kale sat in the chair by himself and hardly whined for about 3/4 of the way through her using the big clippers on his head! Then, he whined a bit but still was a gazillion times better than he usually is with haircuts! It was time for the little clippers......he stood up, put his arms around me as if he were hugging me, I had to hold his head a bit but he tolerated the little clippers on his neck and around his ears. This is the part that is usually the worst when he gets his haircut. I mean, Mikey is usually trying to pin him in the chair, while I assist the girl who cuts his hair by holding his head in a steady position, anyway that I can basically having his head pinned against my body. Last time, Mikey and I both had scratches on our faces from him trying to flee the position. SO, needless to say, when my cousin Jenna was finished and Kale ran out of the kitchen......I nearly melted right there on the floor. I looked at my body in disbelief. I didn't have any scratches on my face, I was not sweating from holding him. He did it! HE FRICKIN DID IT! He got his haircut and he did not freak! I think I told my cousin Jenna a zillion times the amazing situation she just witnessed. This my friends, was HUGE!
Then, when I thought I had seen it all..............my son, the ubber hyper sensitive sensory kid, let me cut every single one of his toenails. Again, I almost fell over in disbelief. I have not been able to cut his toenails without Mikey holding him or while he was awake for over 7 years. This time, he sat voluntarily on the edge of the bed, held still on his own, and let me us the clippers. Unreal and I wouldn't have believed it if I hadn't seen it myself.
So, that brings us to today! The very first day back to school after two weeks off for Christmas break. Typically, I would expect a note from his staff at school saying it was a rough day. For the love, my typical 9 year old had a rough first day back because it sucks going back to school after being home for two weeks. Well....not Kale.....no way......he had a great day. Not only did he have two 30 minute speech sessions at school today that he did ok with, he had a great day overall. He has been up since 4:30 am because his sleep schedule is jacked up from Christmas break, but he hung in there all day long and fought through his early morning rise. He even had private speech therapy tonight after school and he rocked that out as well.
About an hour ago, I was going up the stairs to take Kale his melatonin for the night. He met me half way down the stairs. I told him to drink his juice and that it was time for bed. He drank the juice and I set the cup down on the stairs. Kale then gave me a huge hug. He is a cuddly, lovey boy all the time, but this hug was different. He held me tight and squeezed his mama. After the hug, he stared at my face. I remained silent because these moments have been happening frequently and I suck every little second of them in. He is awakening....in so many different ways and I can see it right in front of my eyes! I have to shut up, watch what is happening and really focus, or I will miss it. At that moment, he took his little finger, pointed to my nose and said nose. Then, he pointed to my eyes and said eyes, then he pointed to my forehead and said head, then mouth, then ears and then he touched the top of my head and said head. Now, many of you are probably thinking....ok, Sadie, so he knows his body parts....he should, he is 9 years old and I would say, yes...you are right. However, until about a year ago, Kale could not identify body parts verbally or on someone else. This moment was different though, because this moment was completely unprompted, it was not in imitation, it was spontaneous. I did not model this for him at any time this evening, it was spontaneous and completely out of the blue. It was awesome! At that very moment, that my son was touching my eyes, my mouth and my head, I knew it was happening.....he is experiencing things he has never experienced before because Autism and the underlying medical conditions that are Autism had such a tight grip on him that he was never able to experience moments like this. He is unraveling. He is peeling back those layers and layers of toxins that are built up in his body after years of exposure. He is coming back to us...slowly but surely it is happening. I can see it, Mikey can see it, Jaden can see it, my mom and dad can see it, his amazing team of teachers and therapists can see it, his family members can see it, we all see it slowly but surely in the way he looks at us and the way he looks at things that are happening around him.
January 10th, 2013 will mark 7 years since my son, Kale was diagnosed with Autism Spectrum Disorder. Little did we know that day would have the impact on our lives like it has. I thought we would be further along in the recovery process by now. However, now is not the time to beat myself up for missing out on a protocol or for going down the wrong treatment path or for not reading the right blogs, etc. etc.....because we have done A LOT for Kale. We have sacrificed our entire lives for his health and recovery from the underlying medical conditions that make up Autism. JADEN has sacrificed the most. BUT, now we are on the right path.....this is going to be an amazing year of firsts for all of us. I am going to document every new experience like crazy. I am going to stand there, be quiet and suck in every little look and word that comes out of his mouth because I DO NOT want to miss a single second of it. I will celebrate the little things for both of my boys. I will encourage them to fight harder and to celebrate harder. 7 years may have come and gone, but this year is the most important for our family. We will win. I can feel it.
We had our 3rd phone call with Mary on December 18th. Our new protocol came in the mail for phase 3 on December 22nd. I made a very wise decision to put off starting the new stuff until the day after Christmas so that our family had a shot at a memorable and enjoyable Christmas. Well....guess what, Christmas was awesome this year...for ALL of us! YEP, you heard it, for ALL of us! Kale did great opening gifts on Christmas Eve and he was excited when he woke up on Christmas morning to see the pile of gifts waiting for him to open. He opened every single present that morning and had an excited look on his face as he grabbed in his pile for more! We left our house at 2:30 pm that day for my aunts house...and then onto my parents house for more and we didn't get home until almost 11 pm. Guess what? Kale opened presents at both houses, didn't have one single meltdown and enjoyed himself all day long. IT WAS AWESOME!!
December 26th....started phase 3 of our homotoxicology protocol. This phase, we are clearing his lungs, respiratory and large intestine. 3 days after the start of the new protocol, my cousin came over to cut the boys hair. This is usually a flippin nightmare for Kale. He is SOOOO sensitive to getting his haircut because of his tactile defensiveness. He is a sensory boy through and through. All of these years, and the haircuts just don't get any easier. He has managed to work through brushing his teeth, washing his hair and brushing it, but the haircuts are just herendous. Well......not this time! Jenna walked in, told him what she was going to do and we put a chair in the kitchen in front of my little tv. Kale sat in the chair by himself and hardly whined for about 3/4 of the way through her using the big clippers on his head! Then, he whined a bit but still was a gazillion times better than he usually is with haircuts! It was time for the little clippers......he stood up, put his arms around me as if he were hugging me, I had to hold his head a bit but he tolerated the little clippers on his neck and around his ears. This is the part that is usually the worst when he gets his haircut. I mean, Mikey is usually trying to pin him in the chair, while I assist the girl who cuts his hair by holding his head in a steady position, anyway that I can basically having his head pinned against my body. Last time, Mikey and I both had scratches on our faces from him trying to flee the position. SO, needless to say, when my cousin Jenna was finished and Kale ran out of the kitchen......I nearly melted right there on the floor. I looked at my body in disbelief. I didn't have any scratches on my face, I was not sweating from holding him. He did it! HE FRICKIN DID IT! He got his haircut and he did not freak! I think I told my cousin Jenna a zillion times the amazing situation she just witnessed. This my friends, was HUGE!
Then, when I thought I had seen it all..............my son, the ubber hyper sensitive sensory kid, let me cut every single one of his toenails. Again, I almost fell over in disbelief. I have not been able to cut his toenails without Mikey holding him or while he was awake for over 7 years. This time, he sat voluntarily on the edge of the bed, held still on his own, and let me us the clippers. Unreal and I wouldn't have believed it if I hadn't seen it myself.
So, that brings us to today! The very first day back to school after two weeks off for Christmas break. Typically, I would expect a note from his staff at school saying it was a rough day. For the love, my typical 9 year old had a rough first day back because it sucks going back to school after being home for two weeks. Well....not Kale.....no way......he had a great day. Not only did he have two 30 minute speech sessions at school today that he did ok with, he had a great day overall. He has been up since 4:30 am because his sleep schedule is jacked up from Christmas break, but he hung in there all day long and fought through his early morning rise. He even had private speech therapy tonight after school and he rocked that out as well.
About an hour ago, I was going up the stairs to take Kale his melatonin for the night. He met me half way down the stairs. I told him to drink his juice and that it was time for bed. He drank the juice and I set the cup down on the stairs. Kale then gave me a huge hug. He is a cuddly, lovey boy all the time, but this hug was different. He held me tight and squeezed his mama. After the hug, he stared at my face. I remained silent because these moments have been happening frequently and I suck every little second of them in. He is awakening....in so many different ways and I can see it right in front of my eyes! I have to shut up, watch what is happening and really focus, or I will miss it. At that moment, he took his little finger, pointed to my nose and said nose. Then, he pointed to my eyes and said eyes, then he pointed to my forehead and said head, then mouth, then ears and then he touched the top of my head and said head. Now, many of you are probably thinking....ok, Sadie, so he knows his body parts....he should, he is 9 years old and I would say, yes...you are right. However, until about a year ago, Kale could not identify body parts verbally or on someone else. This moment was different though, because this moment was completely unprompted, it was not in imitation, it was spontaneous. I did not model this for him at any time this evening, it was spontaneous and completely out of the blue. It was awesome! At that very moment, that my son was touching my eyes, my mouth and my head, I knew it was happening.....he is experiencing things he has never experienced before because Autism and the underlying medical conditions that are Autism had such a tight grip on him that he was never able to experience moments like this. He is unraveling. He is peeling back those layers and layers of toxins that are built up in his body after years of exposure. He is coming back to us...slowly but surely it is happening. I can see it, Mikey can see it, Jaden can see it, my mom and dad can see it, his amazing team of teachers and therapists can see it, his family members can see it, we all see it slowly but surely in the way he looks at us and the way he looks at things that are happening around him.
January 10th, 2013 will mark 7 years since my son, Kale was diagnosed with Autism Spectrum Disorder. Little did we know that day would have the impact on our lives like it has. I thought we would be further along in the recovery process by now. However, now is not the time to beat myself up for missing out on a protocol or for going down the wrong treatment path or for not reading the right blogs, etc. etc.....because we have done A LOT for Kale. We have sacrificed our entire lives for his health and recovery from the underlying medical conditions that make up Autism. JADEN has sacrificed the most. BUT, now we are on the right path.....this is going to be an amazing year of firsts for all of us. I am going to document every new experience like crazy. I am going to stand there, be quiet and suck in every little look and word that comes out of his mouth because I DO NOT want to miss a single second of it. I will celebrate the little things for both of my boys. I will encourage them to fight harder and to celebrate harder. 7 years may have come and gone, but this year is the most important for our family. We will win. I can feel it.
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